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Care Work - Calling Up Justice!

Care Work

carework dreaming disability justice

In their new, long-awaited collection of essays, Lambda Literary Award-winning writer and longtime disability justice activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Leah writes passionately and personally about creating spaces by and for sick and disabled queer people of colour, and creative “collective access” — access not as a chore but as a collective responsibility and pleasure — in our communities and political movements. Bringing their survival skills and knowledge from years of cultural and activist work, Piepzna-Samarasinha explores everything from the economics of queer femme emotional labour, to suicide in queer and trans communities, to the nitty-gritty of touring as a sick and disabled queer artist of colour.

Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of colour are doing to find each other and to build power and community, and a toolkit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Powerful and passionate, Care Work is a crucial and necessary call to arms.

Leah writes brilliantly about sick/disabled/mad/neurodivergent genius, collective care work, and all-too-familiar patterns of abuse and trauma that happen even/especially in radical spaces/marginalized people’s communities. Care Work is a necessary intervention for those in queer/trans people-of-color spaces and white disability spaces alike, but more importantly, it’s an offering of love to all of us living at multiple margins, between spaces of recognition and erasure, who desperately need what Leah has to say. This book is an invitation to dream and to build and to love, as slowly and imperfectly and unevenly as we need to.

-Lydia X. Z. Brown, co-editor of All the Weight of Our Dreams: On Living Racialized Autism

As a Black disabled activist, cultural worker, and collector of art, books and music by people of color with disabilities for more than twenty years, I’m excited and thirsty for Leah Lakshmi Piepzna-Samarasinha’s Care Work. As one of the original thinkers of Disability Justice, I’m overjoyed that artists and activists like Leah are writing books like this one that helps water the roots of Disability Justice. This book is coming from the bed, the streets and on stages that Leah has spoke, taught, performed and struggled on — thats why it’s so accessible and brings lived knowledge into our outdated, stiff institutions and activist movements. In this era of hyper capitalism, toxic hypermasculinity, and White supremacy, we desperately need Care Work.

-Leroy F Moore Jr. , co-founder of Sins Invalid, co-founder of National Black Disability Coalition

We have mad crip dreams. In those dreams there exists a decolonized, liberated future in which none of our bodies and lives are disposable. With Care Work, Leah LakshmiPiepzna-Samarasinha reminds us that turning these dreams into radical practices have already been done, are happening right now within disability justice movements, and will continue to build a future where we are all free. This book is a touchstone for our journey.

-Qwo-Li Driskill, author of Asegi Stories: Cherokee Queer and Two-Spirit Memory

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